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About

SUDEP Awareness Day is as special day which brings organisations and people together to raise awareness of SUDEP Worldwide. Launched by SUDEP Action on 23rd October 2014, it shines a light on the largest cause of death in people with epilepsy, helping to empower people through increased awareness. Next year, we hope to build on the success of the the 2016 campaign when 266 organisations and patient groups added their voice to a united global voice.


The day is aimed at:

  • encouraging people with epilepsy to learn about SUDEP and their individual risk
  • focusing on ways people can manage their epilepsy in order to manage their risk
  • highlighting the need for more research into SUDEP which could help save lives
  • raising awareness of SUDEP amongst the general public
  • commemorating the lives of all those who have died from the condition

Theme

The theme for 2016 was United Against SUDEP.

Campaign Colours

The campaign colors were orange, purple and yellow. 

Our key messages for the day are:

  • SUDEP stands for Sudden Unexpected Death in Epilepsy
  • SUDEP is linked to seizures; better control is the best way of reducing your risk
  • There are things you can do to reduce your risk of SUDEP such as:

  • Taking your medication regularly and reliably.
  • Speak to your doctor before making any changes to your medication.
  • Make sure you have regular reviews.
  • Discuss any lifestyle changes such as having a baby or going to university with your doctor.
  • Avoid excess alcohol consumption and using recreational drugs

  • Tell your doctor if your seizures have changed.
  • If your medication isn’t working, don’t settle for continued seizures. Ask your doctor what other options there might be. The risk of SUDEP varies from person to person.
  • Not everyone with epilepsy is at risk, it is important you discuss your risk with your health professionals.
  • SUDEP Awareness Day was created by UK charity SUDEP Action




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